A 23-year-old woman from Liverpool, Tia Rey, has been diagnosed with a rare autoimmune disorder causing arthritis, fatigue, and breathlessness. Despite enduring pains throughout her youth, Tia considered herself healthy until she noticed a rash, swollen fingers, and stiff joints last year, prompting her to seek medical advice.
After undergoing several tests and consulting with a rheumatology specialist, Tia was diagnosed with antisynthetase syndrome, a condition characterized by muscle inflammation and arthritis. She now faces challenges with walking, standing, and experiences knee pain and difficulty breathing. While the exact cause of her condition remains unknown, stress is suspected to have played a role.
Initially in denial about her diagnosis, Tia has since embraced a positive outlook, realizing the importance of appreciating life. She has experienced difficulties in daily activities and has had to rely on medications, including steroids, to manage her symptoms. Tia is awaiting confirmation for NHS treatment, but due to the high cost, she has set up a GoFundMe page to raise awareness and connect with others affected by similar conditions.
Despite the uncertainties about her future, Tia remains optimistic and aims to take each day as it comes. She emphasized the importance of staying positive and grateful, acknowledging that things could always be worse. If you want to learn more or support Tia, visit her GoFundMe page at gofundme.com/f/Living-with-ASyS.